Priorities for Europe’s research


The European Commission called for public consultation on the 7th Research Framework Programme, in order to define European research policy from 2006 to 2010. Eurordis proposed six main strategic orientations for research that would benefit patients affected by rare diseases. The paper emphasizes collaborative research on a European level as an essential approach for rare diseases due to the large number of diseases (5,000 to 7,000 pathologies), their low prevalence (less than one in 2,000 people in Europe) and their heterogeneity (genetic or not in origin, affecting the heart, the nervous system, the skin, etc.)


The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases