Individuals – Get involved!

This page will help you to navigate the different ways that individuals can get involved with EURORDIS activity: find out how your donation makes a difference, plan a fundraising event, connect with others in the rare disease community or learn more about the work that EURORDIS is doing.

No matter how big or small, every donation and action counts. Get involved! 


Take action

Find out how you can individually take action to get involved in EURORDIS activity.


Connect with others

See below for how you can connect with others in the rare disease community.


Donate or organise a fundraising event

Find out how you can donate to EURORDIS or organise a fundraising event.

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases