How companies can get involved

Companies play a vital role in improving conditions for people living with a rare disease. See below for the many ways that companies can get involved with EURORDIS or contact Céline Schwob:

Please download the EURORDIS Policy on Financial Support by Commercial Companies.


Take action

Find out how companies can get involved in EURORDIS activities.


Donate or organise a fundraising event

Find out how companies can donate to EURORDIS or organise a fundraising event.

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases