13th Workshop, Paris: "Patients' Access to OMPs, Innovative Pricing Schemes and National Measures in a Global Financial and Economic Crisis Environment"

13th Workshop of the Eurordis Round Table of Companies:

"Patients' Access to OMPs, Innovative Pricing Schemes and National Measures in a Global Financial and Economic Crisis Environment"

 

December 13th, 2010

Paris, France

13th ERTC Workshop ParisAttracting a larger audience than usual, the topic of this workshop was timely in a global financial and economic crisis environment, with additional pressure on national healthcare budgets. In a context of promotion of national plans and strategies on rare diseases in all the European Member States, the development of new and more appropriate measures to improve access to Orphan Medicinal Products has become a priority.

During this workshop, the results of two surveys on patient access to orphan drugs were presented and the crucial need for an early dialogue and a coordinated EU approach were discussed, to aid patients’ access to Orphan Medicinal Products.

 

Participants: 86

Programme

Concept Paper

Proceedings

For ERTC Members only, this document is password protected. If you want to become a member, find out more here or contact Anne-Mary Bodin, Operations Assistant.

 

 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades raras, Rare Diseases International es una iniciativa de EURORDISRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas, RareConnect es una iniciativa de EURORDIS RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases