Our Vision and Mission

Our vision is to enable better lives and cures for people living with a rare disease.

Our mission is to work across borders and diseases to improve the lives of people living with a rare disease

  student | étudiant | estudiante | allievo | estudante | Kursteilnehmer | Cells affected by a rare disease | cellules| células | cellule | pilhas | Zellen

To this end, EURORDIS undertakes activities on behalf of its members, notably in favour of:

  • Empowering rare disease patient groups
  • Advocating rare diseases as a public health issue
  • Raising public rare disease awareness, and also that of national and international institutions
  • Improving access to information, treatment, care, and support for people living with rare diseases
  • Encouraging good practices in relation to these
  • Promoting scientific and clinical rare disease research
  • Developing rare disease treatments and orphan drugs
  • Improving quality of life through patient support, social, welfare and educational services


Page created: 19/08/2009
Page last updated: 13/02/2018
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases