- About EURORDIS
- About Rare Diseases
- Rare Disease Policy
- Orphan Drugs & Treatments
- What is an orphan drug?
- Improve the safety of your medicines
- Compassionate Use
- Role of EURORDIS
- Patient advocates involvement
- Access to orphan drugs
- Health technology assessment
- EURORDIS Round Table of Companies (ERTC)
- List of the latest marketing authorisations and orphan medicinal products designations
- Living with a Rare Disease
- Services & Trainings
- Get involved
- News & Events
Job openings
Rare Disease Day Campaign Manager
The RDD Campaign Manager is the project lead of this international awareness campaign. S/he is the focal person to steer the campaign in the right direction, work with the governance and national partners to co‐create and grow the campaign, with measurables outcomes and impact.
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Download the job description (PDF, 465 Ko) Location: EURORDIS Paris (Brussels and Barcelona offices to be considered) If you are interested in applying for this position, please send your CV and cover letter in English to drsm@eurordis.org before 30 April 2022. |
Web Technology Manager
EURORDIS multi‐language web communications are at the centre of EURORDIS’ communications. This position is the main executor of all EURORDIS websites, digital newsletters, video and audio/visual content.
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Download the job description (PDF, 465 Ko) Location: EURORDIS Paris If you are interested in applying for this position, please send your CV and cover letter in English to drsm@eurordis.org before 30 April 2022. |
Drug Repurposing Project Senior Manager
We are looking for an experienced and dynamic senior project manager, ideally with an advanced understanding of drug development and an expertise in repurposing and/or rare diseases.
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Download the job description (PDF, 122 Ko) Location: EURORDIS Barcelona (remote work could be considered) If you are interested in applying for this position, please send your CV and cover letter in English to virginie.hivert@eurordis.org before 15 June 2022. |
Patient Engagement & Training Manager
We are looking for a patient engagement manager with a passion for multi-stakeholder working environment and people & patient empowerment.
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Download the job description (PDF, 105 Ko) Location: EURORDIS Barcelona (remote work could be considered) If you are interested in applying for this position, please send your CV and cover letter in English to virginie.hivert@eurordis.org before 15 June 2022. |
Communications Manager
The Communications Manager plays a key role in EURORDIS and is part of a team of 6 communications
professionals supporting the communications needs of EURORDIS.
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Download the job description (PDF, 92 Ko) Location: EURORDIS Paris If you are interested in applying for this position, please send your CV and cover letter in English to stanislav.ostapenko@eurordis.org before 24 June 2022. |
Events and Nominations Intern
EURORDIS-Rare Diseases Europe is recruiting an intern for the period of 13 March 2023 – 11 August 2023 to
work within the events team at the Paris office or remotely.
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Download the job description (PDF, 346 Ko) Location: EURORDIS Paris or remote If you are interested in applying for this position, please send your CV and cover letter in English to anne.lheveder@eurordis.org |
Patient Engagement Manager in HTA
The Patient Engagement Manager in HTA (PEM-HTA) organises the participation (awareness, training, mentoring) of people living with a rare disease and their representatives in the European Cooperation on HTA, including its technical/scientific and political/strategic aspects, and in national HTA procedures. In addition, the position aims at participating in any research activity in the HTA field where EURORDIS is invited to take a role.
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Download the job description (PDF, 115 Ko) Location: EURORDIS Barcelona or EURORDIS Paris If you are interested in applying for this position, please send your CV and cover letter in English to francois.houyez@eurordis.org before 15 July 2022. |
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The voice of rare disease patients in Europe
The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiative
Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative
The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiative
Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative