- About EURORDIS
- About Rare Diseases
- Rare Disease Policy
- Orphan Drugs & Treatments
- What is an orphan drug?
- Improve the safety of your medicines
- Compassionate Use
- Role of EURORDIS
- Patient advocates involvement
- Access to orphan drugs
- Health technology assessment
- EURORDIS Round Table of Companies (ERTC)
- List of the latest marketing authorisations and orphan medicinal products designations
- Living with a Rare Disease
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Job openings
Patient Engagement Junior Manager – Healthcare, ePAGs, ERNs
The Patient Engagement Junior Manager - Healthcare, ePAGs, ERNs plays a key role supporting EURORDIS activities to enable sustainable patient engagement in the ERNs' activities and decision-making process. The post holder works within the ERN & Healthcare team that is part of EURORDIS Operations Unit.
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Download the job description (PDF, 116 Ko) Location: EURORDIS Barcelona Office If you are interested in applying for this position, please send your CV and cover letter in English to lenja.wiehe@eurordis.org ASAP. Interviews will run through October. |
Governance Manager
The Governance Manager, within the Governance & Advocacy Unit, works closely with the Chief Executive Officer (CEO) and the Core Leadership Team (CLT)
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Download the job description (PDF, 123 Ko) Location: EURORDIS Paris If you are interested in applying for this position, please send your CV and cover letter in English to adsg-117594@cvmail.com by 30 September 2021. |
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The voice of rare disease patients in Europe
The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiative
Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative
The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiative
Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative