Job openings

Rare Disease Day Campaign Manager

The RDD Campaign Manager is the project lead of this international awareness campaign. S/he is the focal person to steer the campaign in the right direction, work with the governance and national partners to co‐create and grow the campaign, with measurables outcomes and impact.

Download the job description (PDF, 465 Ko)

Location: 

EURORDIS Paris (Brussels and Barcelona offices to be considered)

If you are interested in applying for this position, please send your CV and cover letter in English to drsm@eurordis.org before 30 April 2022.

 

Web Technology Manager

EURORDIS multi‐language web communications are at the centre of EURORDIS’ communications. This position is the main executor of all EURORDIS websites, digital newsletters, video and audio/visual content.

Download the job description (PDF, 465 Ko)

Location: 

EURORDIS Paris

If you are interested in applying for this position, please send your CV and cover letter in English to drsm@eurordis.org before 30 April 2022.

 

Drug Repurposing Project Senior Manager

We are looking for an experienced and dynamic senior project manager, ideally with an advanced understanding of drug development and an expertise in repurposing and/or rare diseases.

Download the job description (PDF, 122 Ko)

Location:

EURORDIS Barcelona (remote work could be considered)

If you are interested in applying for this position, please send your CV and cover letter in English to virginie.hivert@eurordis.org before 15 June 2022.

 

Patient Engagement & Training Manager

We are looking for a patient engagement manager with a passion for multi-stakeholder working environment and people & patient empowerment.

Download the job description (PDF, 105 Ko)

Location:

EURORDIS Barcelona (remote work could be considered)

If you are interested in applying for this position, please send your CV and cover letter in English to virginie.hivert@eurordis.org before 15 June 2022.

 

Communications Manager

The Communications Manager plays a key role in EURORDIS and is part of a team of 6 communications
professionals supporting the communications needs of EURORDIS.

Download the job description (PDF, 92 Ko)

Location:

EURORDIS Paris

If you are interested in applying for this position, please send your CV and cover letter in English to stanislav.ostapenko@eurordis.org before 24 June 2022.

 

Events and Nominations Intern

EURORDIS-Rare Diseases Europe is recruiting an intern for the period of 13 March 2023 – 11 August 2023 to
work within the events team at the Paris office or remotely.

Download the job description (PDF, 346 Ko)

Location:

EURORDIS Paris or remote

If you are interested in applying for this position, please send your CV and cover letter in English to anne.lheveder@eurordis.org

 

Patient Engagement Manager in HTA

The Patient Engagement Manager in HTA (PEM-HTA) organises the participation (awareness, training, mentoring) of people living with a rare disease and their representatives in the European Cooperation on HTA, including its technical/scientific and political/strategic aspects, and in national HTA procedures. In addition, the position aims at participating in any research activity in the HTA field where EURORDIS is invited to take a role.

Download the job description (PDF, 115 Ko)

Location:

EURORDIS Barcelona or EURORDIS Paris

If you are interested in applying for this position, please send your CV and cover letter in English to francois.houyez@eurordis.org before 15 July 2022.

 

Page created: 01/09/2011
Page last updated: 29/06/2022
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases