- About EURORDIS
- About Rare Diseases
- Rare Disease Policy
- Orphan Drugs & Treatments
- What is an orphan drug?
- Improve the safety of your medicines
- Compassionate Use
- Role of EURORDIS
- Patient advocates involvement
- Access to orphan drugs
- Health technology assessment
- EURORDIS Round Table of Companies (ERTC)
- List of the latest marketing authorisations and orphan medicinal products designations
- Living with a Rare Disease
- Services & Trainings
- Get involved
- News & Events
EURORDIS Open Academy
Through the EURORDIS Open Academy capacity-building programmes, EURORDIS empowers patient advocates to have the confidence and knowledge needed to bring their expertise to discussions on health care, research and medicines development.
Open Academy alumni engage in these discussions as equal partners, side by side with policy makers, industry and scientists, to effectively improve care, treatment and the lives of people affected by a rare disease.
The EURORDIS Open Academy trains over 150 patient advocates a year. It encompasses all EURORDIS capacity-building programmes: the EURORDIS Summer School, created in 2008, and newer trainings the Winter School, Digital School and Leadership School. These are provided through a blended learning made up of face-to-face trainings and e-learning modules.
Join the Open Academy to participate in free e-learning modules
To ensure the Open Academy is accessible to patient advocates around the world, EURORDIS is developing an e-learning platform that currently includes over 50 courses on the topics of medicines R&D, translational research and scientific innovation. All courses are taught by Open Academy faculty members who are recognised experts in their fields.
Sign up to the Open Academy e-learning to join over 650 people from 100 countries who have already taken the online courses.
If you have any questions about the EURORDIS Open Academy please contact Sharon Ashton
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The voice of rare disease patients in Europe
The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiative
Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative
The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiative
Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative